Mobility vehicles

 Good afternoon everyone. Why are mobility vans so expensive, when the people that need them have limited funds.  For example I am looking at a 2002 Chrysler  Town  & Country with 180,000 miles and they are asking $10,500 when a 2002 regular  Town & Country is about $3500 dollars. The high cost of these vehicles is just frustrating... 

Spring is trying to spring

 Good morning an Happy Monday. Spring is trying to make a appearance here in NW 

Indiana. But with the possibility of more snow  this Friday, spring is sure taking its time this year.

Illegals get more help than I can get

 Good morning and Happy Thursday. It makes me upset that people who illegally come into this country can get more help than I can. It is not like I am asking for a million dollars, I need a part time care giver which I am having a hard time getting because of the cost, and Medicare does not cover home health. I do not need to nor would I want to go to a nursing home, even though my wife works at one. 

Also the cost of a mobility van is outrageous, the more i look for them the more upset I get, I am disabled and get disability how the heck am I going to afford a $50,000 van to get around. I can't go many places now as I can't get in out truck, that we still owe on. So why would :I spend $40 or $50 thousand for a used van. 

Dressing

 Good morning, I never thought at 56 I would no longer be able to dress myself, pull up my pants or put on my own shirt.

No more swimming for me

 This is truly sad to think about no more summertime swimming for me. Not that I could not swim, but getting into and out of lake, pool, or river would be impossible as I cannot stand up from low positions anymore. I can't even get off the furniture anymore, that is why I sit in my power chair all day.  

This just hit me as spring is upon us and we start thinking and planning for summer activities. I love the beach, I love to swim, boat, waterski, and everything water and beach related. The water lapping against the shore is just so soothing to me. Walking barefoot in the sand is just wonderful, having the sand between your toes, and everyplace else as well. There is just something wonderful and magical about the beach and the water, something that transcends time. It is wonderful to sit on the beach with your toes in the sand and let the world pass by. Doing things like that are wonderful to relax and just forget about life for just a bit, to watch kids playing in the sand and water, watching people build sand creations, is cool.  

Not many come to visit

 Good evening everyone.

Not many people have come to visit me since being diagnosed with ALS and especially since I can't go anywhere anymore. Only a very few people have come over to visit me. Being stuck in the house all day with no visitors but therapy and home health nurse kind of sucks... I thought more people would come and visit that is all. 

Wheelchair blessing and curse

 Good morning everyone.

    A power chair is a blessing to have, because only having one good arm would only make me go in circles in a regular wheelchair.  It is a blessing in being able to move about, and getting around. It is good to good to recline in and very comfortable to sit in all day. It is a curse without a mobility van, to be able to get out of the house, it is a curse not to be able to look anyone at eye level, or to reach anything in the cupboard. It is hard to reach many thing up higher. It is a blessing to have overall for sure, as for mobility in moving around for sure or I would be stuck in one place all day for sure. lol With the weather getting nicer around her, NW Indiana, it will be easier to get outside and roll around outside. Hopefully we can raise enough with go-fund-me to get a decent mobility van. Please donate if you can, any amount will be greatly appreciated. Please share with all your friends.   https://gofund.me/6cc14589

No more looking for sports cars

 Good morning everyone and Happy St Patrick's Day. Another thing about ALS, no more looking at sports cars, do dreaming of getting one to zoom down the back roads at high speeds. No more dreaming of those drives along the lakeshore with the top down, or trying to get the top up before it rains. No more trying to find a secluded place with your wife to have a little adult alone time. No more wheeling the dunes at Silver Lake, no more rock climbing at Red Rocks in Nevada, no more laying under my jeep to change the oil or fix the exhaust. No more of so many things with having ALS.

 No now it is trying to find a van so I can get to my doctors appointments, to the store or to the drive thru. 

No more date night

 Good evening, another thing about not being able to get out of the house is no date night. My wife and I can't go out for dinner, a show or even to visit friends. Having ALS has really put a damp on or lives. Just things you take for granted, getting in the car to go out for dinner, run to the store or a visit to a friends house. I can't do anymore until we get a mobility van. 

ALS and the loss of travel

Happy Sunday all. Having ALS really sucks, because now I can't leave the house because I can't get in our truck.  We have a carrier on the back for my wheelchair, but I can no longer lift my leg high enough or stand on my weak leg to support myself. I tried two weeks ago now to travel to a doctor's appointment and had to be placed on the ground by my wife and 911 had to be called to lift my butt back into my chair. 

We have started a go-fund-me to try and raise some money for a mobility van, because they are so expensive even if we trade our truck in it would not cover the cost of a decent van. Not being able to travel out at all sucks. I can't go to the store with my wife, out to eat with out granddaughter, taker her to the park or anything. It really put a damper on life to be stuck at home all the time.

If you can donate it would be appreciated from the bottom of my heart! God bless everyone!

my go-fund-me is: https://www.gofundme.com/f/help-me-with-my-fight-against-als