No more date night

 Good evening, another thing about not being able to get out of the house is no date night. My wife and I can't go out for dinner, a show or even to visit friends. Having ALS has really put a damp on or lives. Just things you take for granted, getting in the car to go out for dinner, run to the store or a visit to a friends house. I can't do anymore until we get a mobility van. 

ALS and the loss of travel

Happy Sunday all. Having ALS really sucks, because now I can't leave the house because I can't get in our truck.  We have a carrier on the back for my wheelchair, but I can no longer lift my leg high enough or stand on my weak leg to support myself. I tried two weeks ago now to travel to a doctor's appointment and had to be placed on the ground by my wife and 911 had to be called to lift my butt back into my chair. 

We have started a go-fund-me to try and raise some money for a mobility van, because they are so expensive even if we trade our truck in it would not cover the cost of a decent van. Not being able to travel out at all sucks. I can't go to the store with my wife, out to eat with out granddaughter, taker her to the park or anything. It really put a damper on life to be stuck at home all the time.

If you can donate it would be appreciated from the bottom of my heart! God bless everyone!

my go-fund-me is: https://www.gofundme.com/f/help-me-with-my-fight-against-als

 Good morning and happy Friday,

  I have not written in awhile, due to being busy and upset about having ALS, it is not for the faint of heart as my muscles continue to weaken. My left hand/arm is about useless now, I cannot tie my shoes, put on my socks and struggle with many things I always took for granted like opening a zip lock bag, or even a box of cereal. 

I have lost my driving privilege's as I blacked out and fell down about 6 stairs at a customers house while doing an estimate. Scared the homeowner as well as my wife. My watch called her after my fall but as soon as she answered it hung up this happened a few times before she called back and the homeowners answered. I won an ambulance ride to the hospital and a 4 day stay, and to this day no one call tell me why I blacked out. They did a CAT scan, an MRI, a doppler on my heart and my carotid arteries, as well as an EKG. Still no answers, also they had me wear a heart monitor for 30 days to see if my heart was the problem, but no new is good news as I have not heart back from cardiologist. I hope to find out more on my next visit to cardiologist.  

Diagnosed with ALS, Lou Gehrig's Disease on February 25, 2021

   I have recently been diagnosed with ALS, it is affecting my left arm and hand.. I have lost strength in my left arm and hand.. I have no fine motor skills in left hand, I have a very hard time gripping it items, and cannot even hold up a foam plate with a tortilla shell on it. It is very sad, it makes me mad and frustrated that I cannot do thing easily, like pull a zipper or open a zip lock bag. Getting dressed is a challenge most days and putting on my boots can take a few minuets.. This disease sucks and it will eventually take my life. Average life expectancy is 2-5 years after being diagnosed..  I hope I last longer than that.. My wife is  taking this very hard, and is very upset about it..   It is a hard thing to think about and deal with right now.. More to come soon... 

 Merry Christmas everyone.. I hope you and your family are doing well during this crazy year... The woo Han flu that has effected thousands of people is sad. We are struggling during this lock down of restaurants, and other eating and drinking establishments. It is unbelievable that you can go to Wal-Mart, or other stores but they are limiting out-to-eat or dine-in restaurants. What are your thoughts on the lock down? Should we reopen our country or keep it locked down?

Selling your stuff at an auction

It is pretty sad that you see most everything you grew up with be sold for a dollar a box.. My mom just had an auction to sell her stuff so she can move to Florida and live with my brother during the winter and then come back and live up North here during the summer.. There were boxes of good things being sold for a dollar, at least 6 drawers of screws, nails, nuts and bolts all sold for a dollar.. If it did not sell, it was being thrown in a dumpster. So sad that her stuff was being thrown out like it was junk... She was also selling her house at the auction, and a 4 bedroom 2 bathroom house all brick that was on a double city lot went for was less than the minimum bid. Sad that the auctioneer was pushing for her to sell the house, but it was in his best interest for her to sell the house so that he would get his cut.. It is just some crap that she was bullied into basically giving her house and things away...  But who am I to be concerned about it.... 

Respect for aging parents

Good evening, hope everyone that reads my blogs is doing well.. I just cannot believe one of my sisters, she is very mad at our mom because she went to Florida to stay with my brother for the winter. To be the devil's advocate, my brother is the golden child who can do no wrong. All of her other children and grandchildren live here in NW Indiana. My sisters are just mad as heck that our mom spend the winter in warm sunny Florida.. My sister said it is not her job to take care of mom, that her house is disgusting and she should have taken her cats with her. Myself and my other sister are taking care of her cats while she is gone. Her house could use a dusting and light cleaning but it is in no way disgusting. I do not understand why she has an issue with our mom being gone. I hope when I am 70+ years old I can be somewhere warm for the winters.. I believe that our mom should be able to do whatever she wants.. She took care of us growing up, now it is our turn to help her out. It just stuns me when children do not want to help their parents out when they get older... Sad very sad, this is my many people end up in nursing homes being taken care of my strangers.