Good evening everyone.
Not many people have come to visit me since being diagnosed with ALS and especially since I can't go anywhere anymore. Only a very few people have come over to visit me. Being stuck in the house all day with no visitors but therapy and home health nurse kind of sucks... I thought more people would come and visit that is all.
Good morning everyone.
A power chair is a blessing to have, because only having one good arm would only make me go in circles in a regular wheelchair. It is a blessing in being able to move about, and getting around. It is good to good to recline in and very comfortable to sit in all day. It is a curse without a mobility van, to be able to get out of the house, it is a curse not to be able to look anyone at eye level, or to reach anything in the cupboard. It is hard to reach many thing up higher. It is a blessing to have overall for sure, as for mobility in moving around for sure or I would be stuck in one place all day for sure. lol With the weather getting nicer around her, NW Indiana, it will be easier to get outside and roll around outside. Hopefully we can raise enough with go-fund-me to get a decent mobility van. Please donate if you can, any amount will be greatly appreciated. Please share with all your friends. https://gofund.me/6cc14589
Good morning everyone and Happy St Patrick's Day. Another thing about ALS, no more looking at sports cars, do dreaming of getting one to zoom down the back roads at high speeds. No more dreaming of those drives along the lakeshore with the top down, or trying to get the top up before it rains. No more trying to find a secluded place with your wife to have a little adult alone time. No more wheeling the dunes at Silver Lake, no more rock climbing at Red Rocks in Nevada, no more laying under my jeep to change the oil or fix the exhaust. No more of so many things with having ALS.
No now it is trying to find a van so I can get to my doctors appointments, to the store or to the drive thru.
Good evening, another thing about not being able to get out of the house is no date night. My wife and I can't go out for dinner, a show or even to visit friends. Having ALS has really put a damp on or lives. Just things you take for granted, getting in the car to go out for dinner, run to the store or a visit to a friends house. I can't do anymore until we get a mobility van.
Happy Sunday all. Having ALS really sucks, because now I can't leave the house because I can't get in our truck. We have a carrier on the back for my wheelchair, but I can no longer lift my leg high enough or stand on my weak leg to support myself. I tried two weeks ago now to travel to a doctor's appointment and had to be placed on the ground by my wife and 911 had to be called to lift my butt back into my chair.
We have started a go-fund-me to try and raise some money for a mobility van, because they are so expensive even if we trade our truck in it would not cover the cost of a decent van. Not being able to travel out at all sucks. I can't go to the store with my wife, out to eat with out granddaughter, taker her to the park or anything. It really put a damper on life to be stuck at home all the time.
If you can donate it would be appreciated from the bottom of my heart! God bless everyone!
my go-fund-me is: https://www.gofundme.com/f/help-me-with-my-fight-against-als
Good morning and happy Friday,
I have not written in awhile, due to being busy and upset about having ALS, it is not for the faint of heart as my muscles continue to weaken. My left hand/arm is about useless now, I cannot tie my shoes, put on my socks and struggle with many things I always took for granted like opening a zip lock bag, or even a box of cereal.
I have lost my driving privilege's as I blacked out and fell down about 6 stairs at a customers house while doing an estimate. Scared the homeowner as well as my wife. My watch called her after my fall but as soon as she answered it hung up this happened a few times before she called back and the homeowners answered. I won an ambulance ride to the hospital and a 4 day stay, and to this day no one call tell me why I blacked out. They did a CAT scan, an MRI, a doppler on my heart and my carotid arteries, as well as an EKG. Still no answers, also they had me wear a heart monitor for 30 days to see if my heart was the problem, but no new is good news as I have not heart back from cardiologist. I hope to find out more on my next visit to cardiologist.
I have recently been diagnosed with ALS, it is affecting my left arm and hand.. I have lost strength in my left arm and hand.. I have no fine motor skills in left hand, I have a very hard time gripping it items, and cannot even hold up a foam plate with a tortilla shell on it. It is very sad, it makes me mad and frustrated that I cannot do thing easily, like pull a zipper or open a zip lock bag. Getting dressed is a challenge most days and putting on my boots can take a few minuets.. This disease sucks and it will eventually take my life. Average life expectancy is 2-5 years after being diagnosed.. I hope I last longer than that.. My wife is taking this very hard, and is very upset about it.. It is a hard thing to think about and deal with right now.. More to come soon...
